Starting the exploration
Posted: Fri Feb 11, 2022 9:23 pm
I have been doing a lot of reading as a lurker, and have decided that it is time to start looking for more personally relevant answers... This is going to be a lengthy post, but I want to get out where I'm coming from and what I think I want to achieve.
I am a 64 year old paraplegic, T-5, AIS-B, for those that speak SCI, or paralyzed from about the bottom of the rib cage down, with some sensation but no motor function. Unlike most SCI's that were caused by trauma directly to the spine, my injury is due to an ischemic attack while I was undergoing some emergency surgery to fix a punctured aorta (will skip details). This gives me an injury profile that differs in many ways from the usual traumatic type injury. Essentially I have what is called 'lower motor neuron damage' where signals make if from my brain down my spinal cord but don't make if from there to the muscles they are supposed to move.
Before my injury in early 2010, I was a straight man enjoying a long time monogamous relationship w/ my GF. We had a good sex life, albeit rather 'vanilla' by the standards of the more 'exotic' folks - we had tried a bit of experimenting and found it didn't do much for us... We were seriously trying to have kids, but definitely got started way later than we should have.... She actually hit menopause about the time I got hurt. I will give her much credit and thanks, she stuck with me when I got hurt, and is with me still (I have NOT discussed this topic w/ her yet, and don't plan to unless I decide to go further than exploring the idea) Recently we have had a serious role reversal, as she has become legally blind due to a bad reaction to a drug... This means I've had to become her caregiver to a major extent, instead of her being mine...
When I got hurt, the impact on sexual function was tremendously impacted, and has gotten worse over time. I have always been on the very small side when non-erect, but but got (and enjoyed) the typical 6" range erections. Immediately post injury, it was harder but I could still get pretty close to that w/ physical stimulation or even vivid imagination - but orgasm did NOT happen! I would hit the 'magic moment' and NOTHING would happen, if I continued stimulation past that point it rapidly became painful the same way that it would if continuing normal intercourse past orgasm w/o giving everything a break... I also don't seem to get erections except when trying.
We tried a few medications that were alleged to help in off-label use - they didn't.... We still enjoy 'cuddling' but anything further is totally frustrating because of the functional failure... The SCI support experts try to sell the idea that this can be just as good, but IMHO they are trying to sell decaf as a good substitute for espresso.... Because it was so frustrating we eventually pretty much gave up and haven't even tried in years.
Over time (possibly because of lack of
exercise) my penis has shrunk to the point of being almost non-existent / internal, I have to work on fishing it out in order to catheterize - cant say I blame it when its only exercise is to have a tube stuck up it several times a day.... My testicles / scrotum still are normal size and sensitivity although when I'm dressed they mostly sit up over the spot where my penis is hiding - this is largely intentional on my part as an effort to avoid having them jammed down between my legs while sitting in my wheelchair. I still have notable discomfort most of the time from the package being wedged in there.
I don't know just how much T they are producing, but my endocrinologist says I'm hypo-gonadal to some degree (which is common in SCI patients) and have been using supplemental T for many years (2 squirts / day of Fortesta Gel) in an effort to minimize the bone density loss that is one of the many secondary complications of SCI. My last scan showed me to have normal density above my injury, and osteopenia below it....
I am a 64 year old paraplegic, T-5, AIS-B, for those that speak SCI, or paralyzed from about the bottom of the rib cage down, with some sensation but no motor function. Unlike most SCI's that were caused by trauma directly to the spine, my injury is due to an ischemic attack while I was undergoing some emergency surgery to fix a punctured aorta (will skip details). This gives me an injury profile that differs in many ways from the usual traumatic type injury. Essentially I have what is called 'lower motor neuron damage' where signals make if from my brain down my spinal cord but don't make if from there to the muscles they are supposed to move.
Before my injury in early 2010, I was a straight man enjoying a long time monogamous relationship w/ my GF. We had a good sex life, albeit rather 'vanilla' by the standards of the more 'exotic' folks - we had tried a bit of experimenting and found it didn't do much for us... We were seriously trying to have kids, but definitely got started way later than we should have.... She actually hit menopause about the time I got hurt. I will give her much credit and thanks, she stuck with me when I got hurt, and is with me still (I have NOT discussed this topic w/ her yet, and don't plan to unless I decide to go further than exploring the idea) Recently we have had a serious role reversal, as she has become legally blind due to a bad reaction to a drug... This means I've had to become her caregiver to a major extent, instead of her being mine...
When I got hurt, the impact on sexual function was tremendously impacted, and has gotten worse over time. I have always been on the very small side when non-erect, but but got (and enjoyed) the typical 6" range erections. Immediately post injury, it was harder but I could still get pretty close to that w/ physical stimulation or even vivid imagination - but orgasm did NOT happen! I would hit the 'magic moment' and NOTHING would happen, if I continued stimulation past that point it rapidly became painful the same way that it would if continuing normal intercourse past orgasm w/o giving everything a break... I also don't seem to get erections except when trying.
We tried a few medications that were alleged to help in off-label use - they didn't.... We still enjoy 'cuddling' but anything further is totally frustrating because of the functional failure... The SCI support experts try to sell the idea that this can be just as good, but IMHO they are trying to sell decaf as a good substitute for espresso.... Because it was so frustrating we eventually pretty much gave up and haven't even tried in years.
Over time (possibly because of lack of
I don't know just how much T they are producing, but my endocrinologist says I'm hypo-gonadal to some degree (which is common in SCI patients) and have been using supplemental T for many years (2 squirts / day of Fortesta Gel) in an effort to minimize the bone density loss that is one of the many secondary complications of SCI. My last scan showed me to have normal density above my injury, and osteopenia below it....