Page 1 of 2

Chronic Orchailagia

Posted: Sun May 24, 2020 8:38 pm
by Philcheck (imported)
I've been in pain for just about a decade now. My chronic pain Doctor has implanted a pheripheral nerve stimulator to block the pain signals coming from ilio and femoral nerves. It has helped a lot and on my second implanted pain control device. I'm tired of it all... I still have my huge pain flares where even the implant does not control the pain. I'm to the point on those kind of days to chop that ball off myself. Wondering if a orchi at least on the one really bad side would help. Venting

Re: Chronic Orchailagia

Posted: Mon May 25, 2020 5:21 am
by TopManFL (imported)
Hey @Philcheck,

Sorry to hear about your pain. It's frustrating to have chronic pain and especially when I put my hope in one possible fix only to find it won't work or worse it worked great but, I can't tolerate it.

Don't cut your nuts off yourself. Seriously bad idea.

I'm sure you and your doctor have discussed many possibilities. Most of those implanted stimulators come with the ability to give the patient a remote device to dial in certain settings. Have you discussed this with your doctor?

One further thought. I went through this back in the late 90s. The pelvic floor muscles can go into spasm and it feels as if it's the rectum, the testicles or the prostate. Actually, to me, it just hurt everywhere "down there". But the symptoms I was describing including feeling as if I needed to poop, having deep pain radiating from my taint and my balls hurting made the doctors concentrate on the prostate, testicles and colon.

Getting tested made me feel as if something were being done. We started with a chest x-ray, then a CT scan of my abdomen. Nothing found except, it lead to a liver ultrasound because of some findings on the CT scan. Nothing found.

Then, they did a testicular biopsy. A cyst was all. So common it was considered normal.

So, off to the GI doctor for a colonoscopy, nothing found.

Then, the urologist who did several very odd tests including a cystoscopy. He also extracted seminal fluid and looked at it under the microscope. Nothing found.

I was told that the pain was of coming from my prostate but that I need not worry as there was nothing wrong. Not helpful.

This was the earliest of early days on the Internet. Websites were crude and all chat was mostly done on News Groups (also called Use Groups). I found a News Group for prostatitis and started reading it.

A doctor at the time had a new theory about pelvic floor muscle spasms. He described every symptom I was having - including the ball pain. The solution sounded too simple to be true. When it got bad (and I mean up to including on the floor screaming in pain bad) put heat on the pelvic floor muscles. I use a hot water bottle (be careful not to burn yourself) and the important thing is to put the heat all the way from the base of the balls, through the butt crack and to the tail bone.

I also will take two Tylenol. Also, every night before bed I would put heat in the same place.

After an Internal Medicine Doctor, A GI Doctor, Two Urologist and more Radiologist Bills than I care to remember, none of them knew what was happening.

Pelvic floor muscle spasms are common and they hurt like hell and radiate pain to places nearby.

Good luck and before you cut off your balls, at least try the heat idea for a few weeks. Every night and in the day if you need it.

Re: Chronic Orchailagia

Posted: Mon May 25, 2020 6:21 pm
by Chesleyt (imported)
I had chronic epididymis and orchitis for 32 years my urologist did a double nerve block in my groin that worked for a time I went to the pain management doctor and he said to have it removed. I had a radical orchiotomy and the pain has never came back. I don't know if this is helpful but having both of my testicles removed for medical reasons is the best thing that has happened to me. YMMV I'm no longer in excruciating pain

Re: Chronic Orchailagia

Posted: Mon May 25, 2020 10:52 pm
by Supranatural (imported)
I had my simple orchiectomy just over 2 years ago for chronic orchalgia. It is 95% gone now. What little pain I do get is negligible and easily overcome.

You will know if the time is right for you to become castrated.

Re: Chronic Orchailagia

Posted: Tue May 26, 2020 7:37 pm
by Philcheck (imported)
My medical history is long and horrible. To be short I had multiple abdominal surgeries close together and the doc and specialists all agree I developed a neuroma. A damaged nerve that was either cut or stretched during one of the surgeries. The pheripheral nerve stimulator has worked well for me but lately my pain symptoms are getting worse again. Will make an appt soon with my pain doc once this Covid crap is over so I can discuss this issue. Just don't know and doubt removing the right ball would help the pain issue since the neuroma is higher up. Tired of all of sudden getting that horrible stab or kick in the balls feelings out of no where.

Re: Chronic Orchailagia

Posted: Tue May 26, 2020 7:51 pm
by Philcheck (imported)
Thanks for the ideas and input.some of your symptoms from the past sound like what I still have.. I get a huge cramp is the only way to describe it and get doubles over till it goes away or worse wake up on the floor thinking how the hell I got down here....

Re: Chronic Orchailagia

Posted: Tue May 26, 2020 11:15 pm
by Paolo
See also this thread from 2007 started by user mrt:

http://forums.eunuch.org/showthread.php ... t=playbook

Re: Chronic Orchailagia

Posted: Wed May 27, 2020 5:59 am
by TopManFL (imported)
A Quick Correction. Above I said "testicular biopsy" and that should have said "testicular ultrasound".

The biopsies were taken from the bladder and just a couple of snips from the prostate during cystoscopy.

Re: Chronic Orchailagia

Posted: Wed May 27, 2020 11:01 pm
by Philcheck (imported)
Thank you for that link to an older thread. Been thru about 98% of the treatments, medications, nerve blocks, and or tests in that list actually. Done everything except for being referred to a urologist.

Re: Chronic Orchailagia

Posted: Thu May 28, 2020 8:06 am
by cutnbulls2ox (imported)
Philcheck (imported) wrote: Wed May 27, 2020 11:01 pm Thank you for that link to an older thread. Been thru about 98% of the treatments, medications, nerve blocks, and or tests in that list actually. Done everything except for being referred to a urologist.

Most urologists don t seem to care about their patient s ball pain. They only seem interested in how much money they can make from them.

I had one urologist tell me that he has lots of patients routinely seeing him for chronic testicle pain. I asked him if he was able to cure most of those pains ? He said no, they just have to live with it, and they continue to have pain.

Wow that profession is really expending zero time and effort to solve men s ball pains ! They have an obvious conflict of interest if they cured testicle pains and did not use it as a steady source of profitable office visits !