Orchiectomy Help
Posted: Wed Nov 15, 2017 5:23 pm
Hi,
I don't really know what to put here. I've been trying to find the right words, maybe I just need to explain my situation.
I was about 17 when it happened, I can't recall if it was 2002 or 2003, but I started having pain in my testicles. It was enough to be bothersome some times, but not enough to be a big problem. I was looked over by doctors and they coulden't find anything wrong with me and the pain kinda went away on it's own. maybe it was growing pains or something.
The pain showed up again in 2005 I want to say, it kept coming back every so often. it was like a 4-6 i would guess in pain scale. Enough to kinda be a bother and see a Dr about them.
THe pain came back after no cause was found the first two times in 2006 and I'd guess last for 6-9 months then go away and then come back. in 2008 the pain came back and was pretty bad, I kept trying to work through things, I was able to do that for the most part untill 2010. That's when things really fell appart.
I ended up dropping out of colledge, and started couch surfing from place to place, the pain got really bad where is was at an 8-9 and would last for days.
To discribe the pain. it is a sevear aching in the testicles that radieates into the inguinal canal area. the vice pain is fairly constand when it is there, but there is also Sharp stabbing like pain that is centered in the testicle and eppididimyus.
I tried all of the medecations perscribed for pain and orchialgia. I tried so many meds that I can't even remember half of them. I had some nerve blocks in the spermadic cord that seemed to help some, so in 2011 I had a spermadic cord neurolysis and a testicular biopsy on the left testicle. The neurolysis was not helpfull and the Biopsy was for a medical study. no abnormalities were found.
My sperm are healthy in ever sperm sample I've given, my testostarone is on the low end of normal, it alsways has been. even in my late teens early 20's. I'm 32 now. I've had a few UTI/ Prostate/ Testicular infections over the years of dealing with this. I've seen IDK I'd guess 10 urologists 3 pain specialests and other doctors for this. no one has been able to fix the pain or find the problem. The most I can get is there may be nerve damage on the spermadic cord and the neurolysis did not fix that.
I've asked more times than I can count, If there is no other option to try, why not try and remove them? I get that it's a shot in the dark on if it would help my pain or not, but after 15 years of dealing with this, I'm unemployed, can't function well, Trying to get on disability (SSI) and being told I'm not disabled enough, would you not try it. I'm gay, I don't want kids, and I know HRT is getting a lot better, it's not perfect, but it's not bad either.
I just want to have my testicles removed, I don't get why it's so hard for people to understand.
I feel like after all these years and all the rejection, tho only corse left is to try Alcohol Injections to cause the testicles to atrophy and maybe then they will remove them with the spermadic cords.
I'm seriously done with having broken testicles. when I'm out and someone asks me why I'm hurting or having issues, it's so jaring for people to think that someone would be in that much pain and suffering from their testicles. My close friends get it, but it's difficult.
I ordered some medical needles and syrenges to do this soon. I'm hoping I can get some support and more information on doing this.
If any one has a better idea, I'm game, but as I've said, I've been turned down by so many doctors that this is the only option I can find, that I can afford and will hopefully get me pain free once my testicles are gone.
I don't know what to end this with, but hopefully it will end with me having no testicles, and having less to no pain from them.
I don't really know what to put here. I've been trying to find the right words, maybe I just need to explain my situation.
I was about 17 when it happened, I can't recall if it was 2002 or 2003, but I started having pain in my testicles. It was enough to be bothersome some times, but not enough to be a big problem. I was looked over by doctors and they coulden't find anything wrong with me and the pain kinda went away on it's own. maybe it was growing pains or something.
The pain showed up again in 2005 I want to say, it kept coming back every so often. it was like a 4-6 i would guess in pain scale. Enough to kinda be a bother and see a Dr about them.
THe pain came back after no cause was found the first two times in 2006 and I'd guess last for 6-9 months then go away and then come back. in 2008 the pain came back and was pretty bad, I kept trying to work through things, I was able to do that for the most part untill 2010. That's when things really fell appart.
I ended up dropping out of colledge, and started couch surfing from place to place, the pain got really bad where is was at an 8-9 and would last for days.
To discribe the pain. it is a sevear aching in the testicles that radieates into the inguinal canal area. the vice pain is fairly constand when it is there, but there is also Sharp stabbing like pain that is centered in the testicle and eppididimyus.
I tried all of the medecations perscribed for pain and orchialgia. I tried so many meds that I can't even remember half of them. I had some nerve blocks in the spermadic cord that seemed to help some, so in 2011 I had a spermadic cord neurolysis and a testicular biopsy on the left testicle. The neurolysis was not helpfull and the Biopsy was for a medical study. no abnormalities were found.
My sperm are healthy in ever sperm sample I've given, my testostarone is on the low end of normal, it alsways has been. even in my late teens early 20's. I'm 32 now. I've had a few UTI/ Prostate/ Testicular infections over the years of dealing with this. I've seen IDK I'd guess 10 urologists 3 pain specialests and other doctors for this. no one has been able to fix the pain or find the problem. The most I can get is there may be nerve damage on the spermadic cord and the neurolysis did not fix that.
I've asked more times than I can count, If there is no other option to try, why not try and remove them? I get that it's a shot in the dark on if it would help my pain or not, but after 15 years of dealing with this, I'm unemployed, can't function well, Trying to get on disability (SSI) and being told I'm not disabled enough, would you not try it. I'm gay, I don't want kids, and I know HRT is getting a lot better, it's not perfect, but it's not bad either.
I just want to have my testicles removed, I don't get why it's so hard for people to understand.
I feel like after all these years and all the rejection, tho only corse left is to try Alcohol Injections to cause the testicles to atrophy and maybe then they will remove them with the spermadic cords.
I'm seriously done with having broken testicles. when I'm out and someone asks me why I'm hurting or having issues, it's so jaring for people to think that someone would be in that much pain and suffering from their testicles. My close friends get it, but it's difficult.
I ordered some medical needles and syrenges to do this soon. I'm hoping I can get some support and more information on doing this.
If any one has a better idea, I'm game, but as I've said, I've been turned down by so many doctors that this is the only option I can find, that I can afford and will hopefully get me pain free once my testicles are gone.
I don't know what to end this with, but hopefully it will end with me having no testicles, and having less to no pain from them.