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Bilateral Orchiectomy Questions & Answers
Posted: Fri Aug 09, 2013 6:08 pm
by triplecrush (imported)
I am 33, married in a heterosexual relationship and underwent a bilateral orchiectomy 2 years ago. Not sure what all my post will consist of but just here to tell my story and answer some questions others may have and ask a few of my own and hopefully get a few scholar responses. I had some problems with one testicle for years and had seen doctors and etc and no matter what they did it was never repaired. 2 years ago I went to a urologist who checked me out and sent me in for an ultrasound and I went home. A few days later he referred me to a surgeon as there was a mass in one of my testicles. At the time I was somewhat freaked out and scared but went ahead and banked some sperm. I had a busy schedule with work and the doctor had a busy schedule so I had only a matter of 2 weeks to get everything I needed done before it was time to lose the little guy. I was informed by the surgeon that I had a spot in my other testicle but he would not know without a biopsy whether it was cancerous or not. Some things did not add up to me but I was thinking financially more than anything. While he is in there he can take a biopsy and if it is cancerous then I am back here again in a week or two paying another co-pay along with another 1200.00 for my 20% so I had the option of it being removed also so I said go ahead mostly because I thought it would look weird with just one so I preferred to have them both gone and be symmetrical not thinking of all the side effects and etc. Other than the masses found and slight pain here and there and intense pain for hours after ejaculating I had no other issues as far as erectile function and etc. I underwent surgery and do not remember any of it. I remember laying on the bed and the sleep dr giving me a pill that was suppose to just calm me down but I literally went under within about 5 minutes after taking it. There was no counting down backwards with a mask on or any of that. I woke up in the same bed in the same place thinking I was still waiting for surgery. The doctor walked in and told me everything went well. At that time is when I noticed and felt that I had gauze packed between my thighs taped on with a support strap on. I was pretty much all there now as far as mentally and alert and etc. My wife pulled the car around and drove me home. I did not notice any difference really. I got home and used frozen peas and ice packs on my crotch pretty much all the time with a wash cloth between the ice and my skin. My wife took the bandages off the next day and my scrotum was somewhat bruised where the incisions were but they were only about the size of maybe an inch long or so. Everything was shrunken up tights though and I made sure to take my medicine ie pain killers, antibiotics, and ice religiously so there was literally no pain at all. I experienced no pain whatsoever throughout the entire healing process. I lied on the couch for a week just watching TV and making sure I did not pick anything up or stress myself. I started walking around the day after surgery to get all the blood flowing and etc. My wife was a nursing student at the time so she helped somewhat as far as what I should do to make things go smoothly. I had not seen my endocrinologist dr though yet and that was one thing I did notice. Although I was not suppose to be sexually active until after 1 week minimum I was curious and wanted to make sure I could still function so I payed close attention hoping I would get morning erection or be turned on by anything. I did get semi erections I remember in the morning but nothing hard enough like normal. And I experienced hot flashes pretty bad starting the day after surgery and they lasted for about 3 days where they were often then they died off to only a hot flash here and there. I remember being a little more sensitive as far as emotionally. I made it into my endo dr about 2 weeks after surgery. He prescribed me some synthetic testosterone that I apply under my arms daily. It burns when putting it on like rubbing alcohol on your face after you shave or something to that effect but only lasts about 3 or 4 minutes then its okay. Taking testosterone has not fixed all my issues as far as functionality. I still had to be prescibed cialis which gives me intense headaches the morning after like a hangover but it does get me up and at em in the erection department. Between that time and about a year nothing really different. I get blood work done and the doctor says everything looks good although one time I got blood work and my liver levels were a little high which synthetic testosterone can cause liver disease and even hepatitis because it has to process it through your liver so that was a little bit of a scare. Taking the testosterone I still feel up and downs because its like i get a surge then by the end of the day its worn off. I will fast fwd a year now to a point where I ran out of my Testosterone and couldn't get in to the doctor for a month to get a refill because he was out of town. I went through all the hot flashes again and the emotional roller coaster just like after surgery all over again, but this time I actually started to develop what they call gynoplasty I think is the word for it but in regular words... man boobs. Not large C cups or anything but more noticable. I also kind of noticed my nipples are a tad bit larger than they were. I got back on the Testosterone and took a little extra dose here and there hoping to remove the man boobs that started to develop in only a months time but they didnt go away so I guess I will try exercise maybe that will help. If anyone has any answer to that let me know. Now a year since then I have been taking the Testosterone (I will call it T from now on) and here lately over the past few weeks I have noticed some changes. Some changes I have but I have not noticed but my wife does and tells me about them. Mostly mentally and emotionally. I am not having hot flashes but I am becoming a little bit more sensitive emotionally and my erections are not working like they use to. Even taking the T like I am suppose to it does not seem to get hard enough to penetrate or if I do get hard enough to penetrate there is no telling how long it will last. Could last 10 minutes could last 10 seconds. We have started trying other things because she has needs also like toys, movies, and etc but not really sure. Even my preferences as to what I enjoy in the bedroom are changing. Things I like today and that turn me on mentally may not be the same tomorrow and so on and so forth. I was never really into receiving oral and giving it I did enjoy but hear lately I have more of an urge to give oral than I do penetrate. This time last year if I walked in on my wife pleasing herself I would have been upset and thought she was doing it because I can't please her or something and now when she does it I am turned on by it. Mentally of course because my penis is not working as it should lately but not sure why all the changes. I know this is a long post and if you are still reading I hope you can share your experiences and solutions with me. As maybe I was able to give you some answers in my post for what your going through and hopefully you can answer some things if you talk about what you have went through. I guess the major questions I have are... Why is the T not working the way it was? How do I get rid of the man breasts? Why is my penis all the sudden not getting completely hard when i get turned on? And what should I expect in the coming months, years, etc?
Look forward to your answers and experiences!
Re: Bilateral Orchiectomy Questions & Answers
Posted: Fri Aug 09, 2013 6:48 pm
by polyeunuch (imported)
Hey Triple! I seen your post and it sounds a lot like my own story. I am 53 yrs old and have been a eunuch for the last going on 21 years. I am also married an
so I will give you some advise that has worked for myself and hopefully answer some of your questions. I was diagnosed with prostate cancer and received chemo and that did not help. I was given deprovera which restricted the production of testosterone in my body. That did not do the trick so my choices were have my testicles removed and continue treating my prostate to attempt to save it or have my prostate removed and save my testicles. You may be asking why I would not just keep my testicles and have my prostate removed. That is the same question I asked myself and my Dr. I was informed without my prostate I would not experience an orgasm again so I elected to go with the testes first. The exclusion of testosterone from my body helped and chemo took care of the rest. I am now cancer free for the past 21 years. I was unable to take any supplements as you described above although I did try a few years back and it did not work as I experienced allergic reactions to it. Also my liver levels elevated and the last thing I wanted was an erection but no liver. This is where you will need to start choosing what is more important to you. Your wife should help you make your decisions (I am assuming you are both still together). I noticed the hot flashes and man boobs as you call them. Those are normal. Your nipples became larger because without testosterone you have estrogen which dominates your body and it will attempt to make the changes necessary as your body will now do normally on its own. You are now a Eunuch being politically correct but in more ways a female than you a male even still have a penis and etc, your body will attempt to change to accommodate what nature is telling it to. If you take to much testosterone it can cause liver damage, rage, and also in some cases your body can actually start producing more estrogen to counteract the testosterone you are taking. Anything natural will be stronger than anything you take that is man made. So what should you expect? It sounds like you have a slight allergy from the sound of the burning sensation when you apply the product. Also it sounds like your body is producing estrogen to counteract the testosterone. This is why you are having emotional changes and etc. This is not exactly a bad thing. You would be surprised how well that alone will be a bonus to your relationship as you and your wife will actually bond more thinking on the same wave length. You can attempt to try another brand or type of Testosterone but they are all the same just different bottles and application methods. Your testicles made more than just that one hormone also. You are missing quite a few hormones but they are not considered important in the medical community and they effect you mentally also. You can expect your body to over react and produce the estrogen to counter act the testosterone you are taking. If you quite taking the testosterone your body will level out and produce estrogen in smaller qty's. You can expect to see an increase in breast growth but a vigorous workout along with the correct diet can prevent this. The only thing you will not prevent is your mental changes. By this I am saying you will begin to be aroused by male genitalia. Whether you are straight, gay, or whatever you want to call it it is perfectly natural since your body is producing more estrogen. You may not find a man in general attractive but your mind is telling you to be attracted to a penis since your mind is now thinking like a female. You will need more emotional and physical comfort like a woman. Your relationship with your wife should not be effected by this and by no means am I telling you to get on a dating site and start seeing men. I am just telling you the facts of the matter. You will begin to enjoy different things. Are you aware of Eunuchs in the Harems, Courts, and Kingdoms of the old days? They were eunuchs because they were able to please the princess, queen, and etc without worry of reproduction. Reproduction was not an issue of jealousy it was an issue with royal blood and commoner blood. They learned from this though also that a eunuch would develop a mindset to please one woman in particular but in general enjoy pleasing women. Example: giving oral, back massages, talking, listening, comforting, etc. Your changes you are experiencing in regards to enjoying giving oral more than actual sex and not being upset at your spouse for masterbating are perfectly normal. You want to please her and your losing that part in your brain that jealousy derives from. Thats where the saying comes from... He is like a eunuch... He knows what to do with it but he cant... You know what to do with it, you know what you use to do but you are beginning to be unable to. I experienced the same situation. My spouse pleased herself, used toys, tried many things from videos and more. Eventually we brought others into our bedroom to take care of the needs she had that I was unable to perform. Most would say I am crazy or I am not a man or I do not care about her but let me tell you something. Your spouse needs to be pleased. Your relationship needs the chemicals that transfer between two intact bodies performing sexual relations. You do not produce the chemicals that are needed to keep her mind healthy from a relationship stand point. She will begin to get moody, very short tempered with you, at times not even want to be around you. The reason for this is because her body is lacking the chemical composition she needs. The only way to prevent this is for her to not have any kind of sex whether it be by herself or with you so that her body does not release her chemical part without your chemical part being there to assist. Have you ever wondered why masterbation is not as satisfying as relations with someone else? You get the orgasm but you do not get what your mind and body want. The other half! To answer some of the questions you had as I will get off my rant now.
You are developing a tolerance or your body is rejecting it. If your body is rejecting it your body will over produce estrogen to counteract it. Stop using it immediately or seek medical advice
How do I get rid of the man breasts?
Work out routine and diet.
Triplecrush (imported) wrote: Fri Aug 09, 2013 6:08 pm
Why is my penis all the sudden not getting completely hard when i get turned on?
Estrogen! This is the beginning. It will not take long. Within another 30-60 days you will not achieve erections any longer. Start preparing now
Triplecrush (imported) wrote: Fri Aug 09, 2013 6:08 pm
And what should I expect in the coming months, years, etc?
Everyone is different. Life is what you make it. Everyone has their own story to tell and their own solution. You will have to trial and error every aspect whether it be medically, relationship, or even mentally. I would not suggest a mental health provider as they are not savy in this field and cannot tell you what you need to do or treat you. You do not think like a normal man. If you want to know how your mind processes things. Think like a woman!
Do not take offense to my statements telling you about the estrogen and female characteristics and thought process you will experience. This does not make you gay nor am I implying you will become gay. Although you will need to learn to accept it otherwise you will have a very lonely confused life.
Good Luck!
Re: Bilateral Orchiectomy Questions & Answers
Posted: Fri Aug 09, 2013 7:26 pm
by tugon (imported)
I have a hard time reading long posts without paragraphs.
Re: Bilateral Orchiectomy Questions & Answers
Posted: Fri Aug 09, 2013 7:41 pm
by triplecrush (imported)
Thanks for trying.
Re: Bilateral Orchiectomy Questions & Answers
Posted: Fri Aug 09, 2013 8:17 pm
by Riverwind (imported)
tugon (imported) wrote: Fri Aug 09, 2013 7:26 pm
I have a hard time reading long posts without paragraphs.
You and me too, I did read both of them but it was not easy.
I want to thank both of you for your long and informative posts,
River
Re: Bilateral Orchiectomy Questions & Answers
Posted: Sat Aug 10, 2013 3:32 am
by unencumbered (imported)
tugon (imported) wrote: Fri Aug 09, 2013 7:26 pm
I have a hard time reading long posts without paragraphs.
...and very long paragraphs, for that matter. There too tedious to read and readers either give up reading them or they just scan them, as I did.
Re: Bilateral Orchiectomy Questions & Answers
Posted: Sat Aug 10, 2013 3:39 am
by unencumbered (imported)
Answers:
RE: Lack of hard erections and breasts. A strict, healthy diet, daily exercise, taking vitamins, losing weight and perhaps increasing your dose of testosterone should have positive affects on your condition.
Re: Bilateral Orchiectomy Questions & Answers
Posted: Sat Aug 10, 2013 4:25 am
by raymar2020 (imported)
Triple crush,
My own experience is that I have used virtually every type of T therapy that is out there. Several of them were total failures. Translated that means that erections and libido disappeared and the hot flashes started. With Androgel , it was very effective for a while. My nature is that I can very easily perspire, and I am quite sure that doing so meant that my clothes were getting more T than me. I saw a slow fade in my ability and when I challenged my doc to look at it we discovered that my levels were low. I switched back to the tried and true injections, albeit once a week, and the issues all went away , and full function returned.
My advice to you would be to check T levels and give injections a try. I use 1 cc of 200mg Depo a week. That works great for me, but your mileage may vary.
I also want to applaud your acceptance of the situation , and dealing properly with the cancer risk. Far too many men would rather die than give up their balls, and they do. Youe wife also sounds a very understanfing and supportive woman. Having that makes the challenges of being a eunuch much easier.
Raymar
Re: Bilateral Orchiectomy Questions & Answers
Posted: Sun Aug 11, 2013 12:42 am
by SplitDik (imported)
Okay, for man breasts the answer is simple. You take Tamoxifen or Raloxifene. Both are SERM drugs which act like estrogen for the non-sexual things (like bone density and skin moisture), but block them for the sexual things (like breast development). Body builders use these all the time, and I personally use them all the time for past 10 years.
For testosterone, I would recommend Androforte which you can order over the web. It is formulated to not irritate the skin (no burning sensation) and in fact is applied directly to the scrotum. The skin on your body (abdomen, etc.) is not very absorbent so most of the creams applied there are wasted and very dependent on how much body fat ans sweat and stuff that is particular to you. The ideal place to use medical cream is the scrotum, however most Testosterone creams like Testim just burn too much. With Androforte they solved that problem, and it's absorption is much much better than other testosterone gels.
Re: Bilateral Orchiectomy Questions & Answers
Posted: Sun Aug 11, 2013 4:10 am
by Riverwind (imported)
Thanks Splitdik, I just might try that.
River