More....
Posted: Mon Sep 03, 2012 12:44 pm
I deleted my post. It was not useful. Just trying to work through my thoughts on different ways to earn a living - legally. 
Danya (imported) wrote: Mon Sep 03, 2012 4:00 pm I couldn't come up with a name for this thread and I didn't want to spend time thinking about it!I figure with this title I've got my bases covered as far as content goes.
Just finished reading a great article, published by a group of pain management professionals. I need to print a few pages and hang them where I can see them.
I am feeling very discouraged by my pain. It is continuing to very slowly dissipate but it's already been about 10 months I've been living with it. What I must remember is that a bad pain day doesn't mean anything beyond that. I must keep in mind that, although my pain is manageable it does place limits on what I can do. This last part is what I'm only now starting to fully accept and it is, of course, difficult to do. In part because it may affect my career options.
I now have insurance through a state plan. I'll make an appointment with my physical therapist so she can evaluate my progress and continue treatment.
I feel so much better when I'm able to get out and be around people. Speaking with friends and, above all, laughing also help.
transward (imported) wrote: Mon Sep 03, 2012 7:01 pm I wish you had the financial resources to do a consultation w/ Marcie Bowers. Perhaps I overestimate her abilities because she was a friend of mine before she went off to Trinidad to study w/ Dr Biber, but she was head of OB/GYN dept at Swedish Hospital here. Unfortunately she is now in San Francisco, which is a long way from you.
Transward
Danya (imported) wrote: Tue Sep 04, 2012 2:53 pm I remember now that Marci started out in your area of the country, Transward. Several years ago, I met her at a transgender conference here.
Danya (imported) wrote: Tue Sep 04, 2012 2:53 pm For the first time, I'm facing that fact that I am not happy with my GRS result. I've never been happy with the pain, but then I thought my recovery would be much further along by now. It's been nearly 17 months since my surgery. I still have no regrets about surgery; I knew there were complication risks and I'm dealing with one of them.
Danya (imported) wrote: Tue Sep 04, 2012 2:53 pm It's healthy, I think, for me to recognize this unhappiness. It leaves me in a more realistic spot to deal with my situation. Now that I have insurance, I can see my physical therapist and add in one or two other things that may help. Physcological counseling on coping with chronic pain, at a minimum. I need to get my emotions in a better place. I'm beginning to feel down much of the time.
Danya (imported) wrote: Tue Sep 04, 2012 2:53 pm A 'down' side of this is that I tend to withdraw from people. I don't want to call friends when I'm in a really low mood and I don't want to leave the house. I know not getting out is a bad idea, but it's still difficult. Seeing several friends yesterday lifted my spirits, but the effect did not last long.
bad. I just recently got used to haveDanya (imported) wrote: Thu Sep 06, 2012 6:21 pm This is getting serious. I'm quoting myself!But only so I don't have to repeat things.
It may seem strange, but I really do not regret surgery. I do 'regret' my pain.On a certain level, I still hope that with enough time my pain will be under better control. This week it's been particularly bad, in that it's been a problem for four days in a row and the pain has been fairly
Danya (imported) wrote: Thu Sep 06, 2012 6:21 pm one to two pain-free days between days with not too bad pain. I don't know what's up.
Part of what needs to happen is for me to adjust to the reality of my situation. All parts of my situation. The pain, being unemployed, potential issues with gaining employment. Those issues include my age. I remain hopeful that I will find a job in my field, but that may not happen. I have not yet come to terms with this, not completely anyway. This is something that has to happen before I make a stronger effort to find other work. It will take me more time to reach this point, and that's OK. For now, I feel that I'm in the process of mourning for a career that I hoped would keep me active well past normal retirement age. It may yet. I just don't have much more time to wait on it.
I do want to withdraw into myself when I'm feeling down, but I hate feeling this way. Years ago, feeling depressed was a more familiar feeling. One that I forgot about when I first started the non-standard monoamine oxidase inhibitor anti-depressent patch EMSAM in early 2007. It is way too high priced for me to return to it now. There are several reasons why I do not want to try an MAOI pill. One of those is potentially severe side effects from unintentionally deviating from dietary restrictions. The patch eliminated this concern.
Part of what I can control is my reaction to feeling low. I can choose to not withdraw, although this is difficult right now. Nonetheless, it is what I must do.
I can also choose to be grateful for the many good things in my life and for the many good things I've had in my life until now. And I can choose to share some of these good things through voluteering.
I have found a nearby place to volunteer, helping at a shelter for battered women and their children. The few miles of travel won't seriously dent my limited gas funds or aggravate my pain.
At first, I wasn't sure I could handle working with these families. I was concerned because of my own experience being assaulted nearly 30 years ago and subsequently dealing with PTSD. The areas I will help in, though, won't be a problem.
Whatever my pain level turns out to be this weekend, I will get out and socialize. I just have to figure out how.