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Re: Advice Needed

Posted: Sun Mar 24, 2013 11:57 am
by artisticlicense (imported)
Well, jorbie77, I do hope you at least try some of the suggestions before you chop anything off.

From what you are writing, it appears you are looking to confirm your decision to be a 'real eunuch'. But, part of what you wrote seems to be a longing for what you once were.

I'm so sorry this happened to you without your knowing.

This site is a safe place for all eunuchs, wanna-be's, and fanciers.

Some are 'made that way', and some 'born that way'.

Whether it was a personal choice, or not; there are some things that aren't worth dwelling on. You're still young, and have life ahead of you.

If it is a physical body appearance thing (body disorder), then OK. There are plenty of those members here too, me being one. Body disorders CAN crop up over-night, though they typically stem from childhood.

Still, you are left with playing the hand you were dealt.

After studying the available literature on this new 'syndrome'; PFS just confirms my disrespect for the basic medical establishment. It proves that money is more important than advice and personal knowledge/education of the product being offered. I do hope that a good judge somewhere allows someone like you to live in utter luxury on a tropical island for the rest of his life . . . at the drug manufacturer's expense. I also hope that the good physician who prescribed the stuff to you will not be left out of the judgement. You better belive he had access to the European warnings in his desk references (on line too).

If you want to try for your 'old self', please at least give the pregnenolone a decent trial. I would suggest 10 mg to start, but no more than 50 mg. If you were royally 'tanked', amped-up, and easily spanked before PFS; I don't think 50 mg would bother you too much. Some people report head-aches at higher doses.

Up-front notice; it won't happen 'over-night'. It may take a while.

It took me weeks before I started 'feeling', and looking like I did when I would wake up 'randy and ready', or respond to normal stimuli. Before, it just felt like I was wasting my time; when I didn't feel like sleeping. I still don't always respond to 'invitation', but can go along with it, and feel satisfied. (I lost the ability to get a hard erection around age 25 - I got past that a long time ago.) The 'spare tire' is gone. I sleep better.

Don't forget about the TribulusTerrestris
artisticlicense (imported) wrote: Wed Mar 20, 2013 3:38 pm (Tribulus terrestris) (http://www.vitacost.com/vitacost-tribul ... andardized) , Tongkat Ali (Eurycoma longifolia jack) (http://www.vitacost.com/action-labs-lon ... 0-capsules) ,
and Ginseng.

Most folks know what Ginseng (http://en.wikipedia.org/wiki/Ginseng) is good for, but Long Jack has chemicals that the male body recognizes as testosterone, but it isn't. So, your newly deformed body might decide to make a substitution. You need at least 1000 mg (one thousand milligrams) of ROOT extract. It needs to be 'cycled'; i.e., a week on, week off. Here's a web site with lots of info (http://www.sd-200.com/).

Tribulus Terrestris has been studied pro and con, in animals and men of widly varried ages. European studies are all 'pro', in people and animals. U.S. studies are 'con' for people, but 'pro' for animal. (Hmmmm; who bought who?) It's main chemical is protodioscin (http://en.wikipedia.org/wiki/Protodioscin), which increases levels of testosterone, dihydrotestosterone and dehydroepiandrosterone. It increases mental desire, and releases nitric oxide (http://en.wikipedia.org/wiki/Nitric_oxide) to the penis and surrounding nerves (might = no numb penis).

It is a proven proerectile aphrodisiac that you should at least give a try. It does not work 'instantly' (2-4 hours, at least). And, because it can upset some stomachs, should be taken with a meal.

These things truely have helped me, and I hope they help you.

Re: Advice Needed

Posted: Sun Mar 24, 2013 3:21 pm
by jorbie77 (imported)
Artisitic -

Thanks for the advice. Yes...I won't be chopping anything off anytime soon....I've only been stuck with the PFS for a little more than 2 years...so much like Winston Churchill(who had a naturally extremely low libido coincidentally) said, I have just begun to fight. This(thinking about castration) is part of the process...and I thank all of you for putting up with my last several posts. Its finally nice to not feel quite so alone in my condition - and while their is also a PFS forum...it tends to the negative, not surprisingly, and I try to avoid it as much as I can. I have tried without success to get pregnalone this weekend - but GNC does not carry it. I will be purchasing it online - and will be sure to stick with it for a while. While I agree the pharmaceutical industry is rife with greed, and that is a scary thing for anyone that relies on their drugs. My hope is that after this Propecia mess is cleaned up, it leads to massive reform with both the drug companies and the FDA. After Vioxx, and now Propecia, the drug companies just can't be trusted right now. And I don't want a life on a tropical island - I just want to feel like myself - to have my libido, my penis and my SOUL back....I hope with time it will all return. I am optimistic - and not without reason. PFS is a fascinating new disorder - one that should seemingly have a cure - and now that we have a PFS foundation to produce funding - full scale research should commence. Who knows - it might lead to some incredible new insights into the male endocrine system. Thanks for all your support - I will be lurking on your forum in the future - and while I may not be a traditional eunuch - at least I don't wear the "lesser seal" - I am (unfortunately) with you in spirit. Good luck in all your own personal journeys.

Derek

Re: Advice Needed

Posted: Sun Mar 24, 2013 4:05 pm
by jorbie77 (imported)
One more question - I know you guys think Cheney's is a quack...and I will take your word for it. One of
jorbie77 (imported) wrote: Thu Mar 21, 2013 4:04 pm the side effects of castration
that I either read in his book or saw somewhere else is crazy premature wrinkling of the skin and bags under the eyes....is this true or not for most eunuchs? I haven't had that as a PFS symptom....

Also - yes - I agree that the doctor should have looked online...but I did a Google search and just typed in Propecia - and nothing came up. Plus - my girlfriend was a DRUG REP for Shering Plough - and she gave me the go ahead. I assumed if a drug had bad consequences my drug rep GF would have heard of it...so while I did blame others, and myself for my plight - I am taking Nullorchis' advice and learning to accept the hand I've been dealt.

Re: Advice Needed

Posted: Sun Mar 24, 2013 4:09 pm
by artisticlicense (imported)
These are two on-line supplement companies I use with great results;

Vitacost.com (http://www.vitacost.com/); A discount web-store. I have only had one problem with them over the years, but they corrected it 'over-night', and gave me a $10 gift certificate! Always 3-day shipping - but your location may be different. Free shipping with orders over $49.

Pretty-much count on them for nearly everything I can't get locally; glutten-free foods, and supplements. I live so far from any 'healthfood' stores, it's cheaper to order what I want.

Wonder Labs (http://www.wonderlabs.com/); Again, always fast shipping, free on orders over $99. Don't carry everything, but everything with their label is made in their own facility. They are a bit pricey on some things.

Good luck. Keep us posted.

Re: Advice Needed

Posted: Sun Mar 24, 2013 4:31 pm
by artisticlicense (imported)
jorbie77 (imported) wrote: Sun Mar 24, 2013 4:05 pm One more question - I know you guys think Cheney's is a quack...and I will take your word for it. One of [q
uote="jorbie77 (imported)" t
jorbie77 (imported) wrote: Sun Mar 24, 2013 4:05 pm ime=1363842240]
the side effects of castration
that I either read in his book or saw somewhere else is crazy premature wrinkling of the skin and bags under the eyes....is this true or not fo
[/quote]
r most eunuchs? I haven't had that as a PFS symptom.... I'd think that would be due to stress and not necessarily have anything to do with testosterone loss. Happens to women too. Sleep loss = baggy eyes and wrinkles. Use a little hemorrhoid cream
jorbie77 (imported) wrote: Sun Mar 24, 2013 4:05 pm under the eyes to tighten up. Clears up the bruising too.

Also - yes - I agree that the doctor should have looked online...but I did a Google search and just typed in Propecia - and nothing came up. Plus - my girlfriend was a DRUG REP for Shering Plough - and she gave me the go ahead. I assumed if a drug had bad consequences my drug rep GF would have heard of it...so while I did blame others, and myself for my plight - I am taking Nullorchis'
advice and learning to accept the hand I've been dealt.

Remember, you are just a number to your doctor, and especially the pharmaceutical companies; not to disparage your GF . . . I'd be amiss to think she did not know, or did not discount the 'margins' of side-effects reported. That's what a physician does. 1-in-a few thousand deaths, etc., = go-ahead with the FDA, and "OK" with any physician. Your girlfriend may have discounted any known reporting due to the hushed-up documentation left off U.S. labeling. To sell drugs to physicians, the drug reps NEED the literature. It's all about sales and numbers.

Bing search (http://www.bing.com/search?q=Propecia+L ... FORM=R5FD6) = 585,000 results for Propecia side-effects, lawsuits, advice . . .

Schering-Plough was purchased by Merck Pharma (http://www.msppharma.com/msp_jv/mspphar ... /index.jsp) - Merck had to deal witrh a huge mess of lawsuits over Vytorin and Zetia (http://www.pharmaceutical-business-revi ... esolve_law suits_090805), that Schering-Plough left behind. Testement to their 'honesty'. In 2004, Schering-Plough was accused of marketing gimmicks and payoffs to doctors (http://www.nytimes.com/2004/06/27/busin ... r=USERLAND) for prescribing the company's pharmaceutical products.

Re: Advice Needed

Posted: Sun Mar 24, 2013 6:55 pm
by jorbie77 (imported)
artisticlicense (imported) wrote: Sun Mar 24, 2013 4:31 pm Remember, you are just a number to your doctor, and especially the pharmaceutical companies; not to disparage your GF . . . I'd be amiss to think she did not know, or did not discount the 'margins' of side-effects reported. That's what a physician does. 1-in-a few thousand deaths, etc., = go-ahead with the FDA, and "OK" with any physician. Your girlfriend may have discounted any known reporting due to the hushed-up documentation left off U.S. labeling. To sell drugs to physicians, the drug reps NEED the literature. It's all about sales and numbers.

Bing search (http://www.bing.com/search?q=Propecia+L ... FORM=R5FD6) = 585,000 results for Propecia side-effects, lawsuits, advice . . .

Schering-Plough was purchased by Merck Pharma (http://www.msppharma.com/msp_jv/mspphar ... /index.jsp) - Merck had to deal witrh a huge mess of lawsuits over Vytorin and Zetia (http://www.pharmaceutical-business-revi ... esolve_law suits_090805), that Schering-Plough left behind. Testement to their 'honesty'. In 2004, Schering-Plough was accused of marketing gimmicks and payoffs to doctors (http://www.nytimes.com/2004/06/27/busin ... r=USERLAND) for prescribing the company's pharmaceutical products.

Yes - NOW when you do a Google search a lot of information comes up. However, in February 2010 - a Google search done by just typing in "Propecia" would not have revealed anything about the side effects until the 5th page. I needed to have typed in "Propecia side effects" and I would have been warned...and don't think I don't cry myself to sleep sometimes wondering WHY I didn't do more due diligence. I just trusted the FDA and Merck - that a drug that had been on the market since 1992 would have been "tested" enough so all the side effects were known - little did I know how active Merck was in covering up the side effects, and how complicit the FDA was in letting them go over three years with separate labels in US v Europe.

Anyways - like I said - I am optimistic - better days are ahead....but it may take a few years to get there. Thanks again for your help Artistic - I just ordered a bunch of the stuff you recommended. I will keep everyone abreast of my progress.

Re: Advice Needed

Posted: Thu Mar 28, 2013 11:08 am
by artisticlicense (imported)
Something I just thought of, and there are several members who can attest; at your age, your brain is educated toward sex. It is the largest sex organ in your body.

The same stimuli that once 'turned you on', will still be recognized by your brain. However, you may not 'feel-up-to-it' - THAT would be the broken testosterone bio-signaling; or a typical eunuch response. Add that to your frustration focused on the numbness in your penis, and you feel 'lost'.

You know what your penis is, what it does, how it should react and feel. You need to find a way to reconnect the broken link between it and your brain.

As stated in earlier posts, try a slow massage, and 'think' about it while you are working it. 'Remember' what you already know. Concentrate on release.

This is the same advice women get for reconstructive Clitoridectomy surgeries, where they substitute a different body part, skin and nerves.

This is the same advice burn victims get. A whole bunch of those people recover nerve damages. Nerves can regenerate, and the brain can learn a new pathway to them.

Stimulant creams like the Ginseng, and stimulant supplements like L-arginine will increase blood-flow; and should help in the nerve signal healing.

From what little info there is on PFS, your nerves are not physically 'damaged', but your brain is (not recognizing them).

The nerves going to your penis are closely associated with your tailbone spinal junction (in simplest terms). Try massage between your anus and scrotum, and between your anus and tailbone (where the nerve bulb of your penis root begins). Men who break their tailbone from sports and kick injuries loose penile function and feeling. One of the support/recovery techniques for this is inversion therapy. Ever seen a Teeter-table (http://www.teeter-inversion.com/)? Inversion releases tension on the spine, especially the lower spine. Relaxing the spine does rejuvenate the lower extremity nerves. It is a new therapy that is gaining wide attention from specialists.

Maybe try the massage techniques while inverted . . . something new to bring to your relationship? She may think it's fun or kinky.

Try hanging a weighted cord or ornament on your penis, and walk around, allowing it to swing or bounce around. Perhaps do it in front of a mirror. Watch what it does. Eyes-to-penis, feel the ornament moving = feel the penis. Brain-homework.

Re: Advice Needed

Posted: Thu Apr 18, 2013 2:38 pm
by jorbie77 (imported)
Thanks for the advice. Its get to know that someone with severe nerve damage can overcome it. I have been on the pregnalone for about 2 weeks and have noticed my sleep seems to have improved. Nothing has improved with penile sensation, but I am going for a message this weekend. I am trying to reconnect my brain-penis pathway per your recommendation. I will keep you posted - thanks for offering your advice.

Re: Advice Needed

Posted: Thu Apr 18, 2013 5:13 pm
by transward (imported)
I would like to second Kristoff on seeing a therapist. What I am going to say is not meant as any criticism nor I am not implying any mental illness or deception. But in talking to hundreds of trans people and being one, I have learned about denial and self deception. Most of us human beings lie to ourself more than to others. If we didn't we probably couldn't live with ourselves.

To me, the reasons you propose for pursuing castration sound more like the rationalization people go through to justify something they already want to do. The straight (and most of the gay) men I know have a horror of the very topic of castration. Finding themselves in your situation I can't visualize them considering solving the problem by finishing the process and getting rid of the balls and the rest of the testosterone.

This is not to say that you should not pursue castration or that your reasons are invalid (sometimes an Alexandrian solution works), but I think some time spent in the Socratic search to "know thyself," with the assistance of a therapist, to understand your own motivation and desires could help avoid a huge mistake. The situation is not exactly the same, but I have known trans folk who did not sufficiently do this, who went all the way through SRS, before realizing that that was not what they really wanted. Believe me, afterwards is not the time to come to that realization.

Transward

Re: Advice Needed

Posted: Fri Apr 19, 2013 1:15 am
by transward (imported)
Regarding the penile numbness, are you by any chance an avid bicyclist? Numbness caused by compression of the penile nerve is a well known side effect of long periods on a bicycle saddle, particularly narrow racing style saddles. Failing that, any history of back problems, or diabetes, both of which can cause numbness?

Transward