Penile Cancer
Re: Penile Cancer
If it's OK to ask, can you tell us what some of the symptoms and visual signs were, in your case?
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Littledick (imported)
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Re: Penile Cancer
Sure can Paolo.
About two months ago, I noticed a small lump on the head of the penis and some rough skin on the shaft.
Within a week I showed it to my doctor (GP) and he thought the lump looked lie a wart or something similar but he was concerned that the rough sin could turn cancerous, so he refered me to the urology dept of the hospital.
They saw it and the lump had fallen off but the rough skin had turned into a squamous cell carcinoma (SCC) with in two weeks and had grown large in that time.
A few weeks later a biopsy was done under full anasthetic along with cystoscopy (camera up the water works). The Urologist saw me after and the SCC had doubled in size in 7 days. I ended up with catheter for a week because I couldn't pee after (that was a pain) after that opperation.
A CT scan was done to see if the SCC was just in the skin or had moved into the penis structure itself, so it seems it has.
The reults came back and the opperation had gone from a partial penectomy of removing part of the head and sharft skin to a full penectomy.
The SCC stings from time to time and there is a discharge from it, all in a space of two and a bit months
The operation will start with two key hole surgeries over the lymph nodes, they are hoping that there in no cancer in them, whilst they wait for the results the will do the penectomy and perineal urethrostomy (re-route), so I will have a catheter in for ten days whilst the new pee hole heals.
If they fine cancer in the lymph nodes it means more major sergery in the groin at the same time.
So the SCC is an agressive type and this has happened in under three months. They cant say why it happened but I have been vulnerable to SCC'c & BCC's as I have had many cut off of the skin on my arms and face over the years, so it seems skin dosn't have to be sun to get damaged to get a cancer going.
Hope this explains what happened, I am still feeling a little numb about the whole thing, I will keep intouch as thing progress.
Littledick
About two months ago, I noticed a small lump on the head of the penis and some rough skin on the shaft.
Within a week I showed it to my doctor (GP) and he thought the lump looked lie a wart or something similar but he was concerned that the rough sin could turn cancerous, so he refered me to the urology dept of the hospital.
They saw it and the lump had fallen off but the rough skin had turned into a squamous cell carcinoma (SCC) with in two weeks and had grown large in that time.
A few weeks later a biopsy was done under full anasthetic along with cystoscopy (camera up the water works). The Urologist saw me after and the SCC had doubled in size in 7 days. I ended up with catheter for a week because I couldn't pee after (that was a pain) after that opperation.
A CT scan was done to see if the SCC was just in the skin or had moved into the penis structure itself, so it seems it has.
The reults came back and the opperation had gone from a partial penectomy of removing part of the head and sharft skin to a full penectomy.
The SCC stings from time to time and there is a discharge from it, all in a space of two and a bit months
The operation will start with two key hole surgeries over the lymph nodes, they are hoping that there in no cancer in them, whilst they wait for the results the will do the penectomy and perineal urethrostomy (re-route), so I will have a catheter in for ten days whilst the new pee hole heals.
If they fine cancer in the lymph nodes it means more major sergery in the groin at the same time.
So the SCC is an agressive type and this has happened in under three months. They cant say why it happened but I have been vulnerable to SCC'c & BCC's as I have had many cut off of the skin on my arms and face over the years, so it seems skin dosn't have to be sun to get damaged to get a cancer going.
Hope this explains what happened, I am still feeling a little numb about the whole thing, I will keep intouch as thing progress.
Littledick
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Littledick (imported)
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Re: Penile Cancer
Well finally home after the operation which took 5 hours on the table.
9 days in hospital,
They got clear margins when doing the radical penectomy.
However even though getting on with it in less that 3 month the lymph node to the area effected the cancer has got there already.
So I have another major surgery to go, chasing the next lot of lymph nodes.
They used nuclear medicine to find the lymph node from the area on the penis. They said just two injection but the guy doing it lied.
He ended up doing 5 injections doing two injections in each input site. He said its like a bee sting what a joke it felt like he was cutting my penis off without anaesthetic, at least the nurses tried to help me get through it.
The stitches and catheter will be removed next Monday the 22nd of May in the hospital urology clinic.
My testicles are massive as they are swollen so much which should start to subside over the next few weeks.
Thanks for all your support
9 days in hospital,
They got clear margins when doing the radical penectomy.
However even though getting on with it in less that 3 month the lymph node to the area effected the cancer has got there already.
So I have another major surgery to go, chasing the next lot of lymph nodes.
They used nuclear medicine to find the lymph node from the area on the penis. They said just two injection but the guy doing it lied.
He ended up doing 5 injections doing two injections in each input site. He said its like a bee sting what a joke it felt like he was cutting my penis off without anaesthetic, at least the nurses tried to help me get through it.
The stitches and catheter will be removed next Monday the 22nd of May in the hospital urology clinic.
My testicles are massive as they are swollen so much which should start to subside over the next few weeks.
Thanks for all your support
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Valery_V (imported)
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Littledick (imported)
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Re: Penile Cancer
Thanks Valery
Appreciate your support
I will keep updating as more information comes to hand
Again thanks mate.
Appreciate your support
I will keep updating as more information comes to hand
Again thanks mate.
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WheelyCurious
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Re: Penile Cancer
Again, many wishes for a good recovery and no recurrence / further spread.
Something you may wish to look into is whether you would get any benefit from using medicinal (NOT psychedelic!) mushrooms. I have a friend that has what his doctors told him was 'end stage' liver cancer that they couldn't do much with and to 'get his affairs in order'...
He is Chinese, and I don't know if that is what started him looking at it, but he says there is a lot of research and 'Chinese Medicine' traditional practice of using mushrooms in the treatment of many illnesses, including cancer. At any rate, since he started using the mushrooms, his cancer tumors have shrunk and reduced to 'undetectable'. (He does still get modern 'Western Medicine' chemo, but less of it)
He believes that using the mushrooms in conjunction with 'modern medicine' increases the effectiveness of it.
However he is not referring to the usual grocery store button mushrooms or even the fancy gourmet ones (which he also grows) but more some of the ones used medicinally by Oriental medicine, such as Reishi and TurkeyTail which he said are not tasty and need more processing to extract the good stuff in them.
He did say he was making an extract of these mushrooms, but I don't know what he is doing in terms of making it available to others.
He has a website where he is trying to raise money to fund a way of doing further R&D on figuring out just what the useful compounds in the mushrooms are, last time I checked it, it seemed like a bit 'under construction' but as a starting point... https://www.veryfungi.org/ (BTW I am NOT 'out' so be discrete about how you heard if contacting him)
As a minor EA note - In Paolo's Blue Creek series in the story archives (which is at least partly history based), one of the characters is a Chinese eunuch that uses mushrooms and other herbal substances to treat some of the other characters in the tale quite effectively... No idea where he got the idea, but it was an interesting coincidence...
WheelyCurious
Something you may wish to look into is whether you would get any benefit from using medicinal (NOT psychedelic!) mushrooms. I have a friend that has what his doctors told him was 'end stage' liver cancer that they couldn't do much with and to 'get his affairs in order'...
He is Chinese, and I don't know if that is what started him looking at it, but he says there is a lot of research and 'Chinese Medicine' traditional practice of using mushrooms in the treatment of many illnesses, including cancer. At any rate, since he started using the mushrooms, his cancer tumors have shrunk and reduced to 'undetectable'. (He does still get modern 'Western Medicine' chemo, but less of it)
He believes that using the mushrooms in conjunction with 'modern medicine' increases the effectiveness of it.
However he is not referring to the usual grocery store button mushrooms or even the fancy gourmet ones (which he also grows) but more some of the ones used medicinally by Oriental medicine, such as Reishi and TurkeyTail which he said are not tasty and need more processing to extract the good stuff in them.
He did say he was making an extract of these mushrooms, but I don't know what he is doing in terms of making it available to others.
He has a website where he is trying to raise money to fund a way of doing further R&D on figuring out just what the useful compounds in the mushrooms are, last time I checked it, it seemed like a bit 'under construction' but as a starting point... https://www.veryfungi.org/ (BTW I am NOT 'out' so be discrete about how you heard if contacting him)
As a minor EA note - In Paolo's Blue Creek series in the story archives (which is at least partly history based), one of the characters is a Chinese eunuch that uses mushrooms and other herbal substances to treat some of the other characters in the tale quite effectively... No idea where he got the idea, but it was an interesting coincidence...
WheelyCurious
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Littledick (imported)
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Re: Penile Cancer
Had the stitches out from the penectomy, 18 in all in the front.
However still have the chatterer in for another week and some were the reroute was done
They still have to chase some more lymph nodes on one side in several weeks time.
Have absolutely no energy, me get up and go, had got up and went.
More to follow.
Littledick
However still have the chatterer in for another week and some were the reroute was done
They still have to chase some more lymph nodes on one side in several weeks time.
Have absolutely no energy, me get up and go, had got up and went.
More to follow.
Littledick
Re: Penile Cancer
Paul Stamets is a famous author/practitioner in the mycology world. That's where I learned about the benefits of certain types of mushrooms. Turkey Tail and Reishi (Ganoderma sp.) mushrooms are at the top of the list for anti-cancer properties. While both of these mushrooms are too tough and woody to eat, they are either boiled down (fresh) to make tea or a soup stock, or dried and ground into powder and taken in capsules.
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Valery_V (imported)
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Re: Penile Cancer
Paolo wrote: Wed May 24, 2023 6:28 am Paul Stamets is a famous author/practitioner in the mycology world. That's where I learned about the benefits of certain types of mushrooms. Turkey Tail and Reishi (Ganoderma sp.) mushrooms are at the top of the list for anti-cancer properties. While both of these mushrooms are too tough and woody to eat, they are either boiled down (fresh) to make tea or a soup stock, or dried and ground into powder and taken in capsules.
PAUL STAMETS
is an American mycologist and entrepreneur who sells various mushroom products through his company. He is an author and advocate of medicinal fungi and mycoremediation.
https://paulstamets.com/
https://en.wikipedia.org/wiki/Paul_Stamets
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Littledick (imported)
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