...my uncle died, while all happened too late. Of course all not really easy. Radically and radiation is surely a must in such case..

You are in a group nobody wants to be in. I am not a doctor but have done quite a bit of research about prostate cancer. Have you had a biopsy? If you truly are at stage 2, I’m not sure I would recommend Active Surveillance, unless your Gleason score is 7 or less. I was diagnosed at age 63 with stage T2a Gleason 9 from a biopsy. My PSA was 6.2 at the time of biopsy. I had Robotic Prostatectomy in March 2018. Mine was not far from spreading, but had not yet. I will not downplay the effects of surgery. One side effect is why I found this website along with many others. I have had several surgeries in my lifetime including neck surgery. They all pale in comparison to this one. Pre-surgery, the side effects of the surgery were described to me as incontinence, possible loss of erection, and a very small loss of length. After 4 months, I started having spontaneous erections. At less than 6 months my continence was much improved. I lost about 3” of length and it is the hardest thing I have ever had to live with. I searched everything I could find online trying to find a way to alleviate this side effect. I am in a very small minority, and it is unlikely you would have this. Most people lose 1” or less. I was prepared for no more sex, but not the entire loss of flaccid length to the point it feels like it is trying to pull inside out due to the amount of urethra cut out. I recommend careful consideration as to what steps you take. I had a coworker (now deceased from the cancer) who had the salvage radiation and it was worse for him than the surgery. I am now getting radiation for a recurrence at about 2 years later. I have had 15 radiation treatments of 39, so I don’t know how mine will end up. PSA is not a very good indicator of cancer until the prostate has been removed. If you do nothing and let it spread, your options can be much worse. Most recommend having surgery first because after radiation, surgery is no longer a good option. If you do opt for surgery, I recommend using a surgeon who has done a LOT of them. It might be a good idea to get a second opinion for the watchful waiting.

It’s really very interesting about your experience. Of course it is important to check the situation by a doctor. Better 2 docs. Not so seldom prostate cancer is not so seldom. Often it’s too late. Often spreading and it’s better to make some against, before. The PSA is an indicator, but not really very with a sure result. Think a biopsy should happened, if there is a minimal risk. Maybe there are some side effects. But better, than it’s too late. If erections are gone it’s not a great problem. Same if incontinence is the result. I understand really your situation. But I am completely on your side. About radiation. Do you think it’s necessary, a help and a surgery must not be? Or both should be a must to be sure cancer is killed? I must tell you, that I think the prostate removal is the best way. And give you more safity. Correct?

PeterCurzon48 (imported) wrote: Tue Mar 17, 2020 2:25 am I have recently been diagnosed with Stage 2 prostate cancer and placed on Active Surveillance. To my mind this isn't going to cure anything and just kicks the can down the road accompanied by frequent PSA tests, MRI scans and Interperineal biopsies. I'm going to request that my treatment be changed to a Simple Orchidectomy followed later by a Radical Prostatectomy. Does anyone have any helpful comments regarding my treatment preferences.

I understand what you are going thru. It is tough to think and make the right decision. Try to gather as much information. PSA Gleason numbers.

Considering how many men die terrible deaths from prostate cancer, you d think way more research and methods should be tried to cure or to prevent it. Most castrations seem to be done too late to do much good.

I was having trouble with my PSA being high and had 2 biopsies done and was told that I needed to have my PSA checked every 6 months. I was castrated in 2019 for other medical reasons and put on testosterone. The testosterone had unwanted side effects and I quit using it in January. I found out that I have osteopenia in March and started estrogen therapy. I just got my PSA results today and it was 0.01 pg/ml and my estradiol level was 96 pg/ml and I'm feeling good.

I found out i have 00% chance of prostate cancer from both sides of the family. I am pursuing preventative removal rather than “regularly test until we see you have cancer”.

Stumpycoon (imported) wrote: Fri May 29, 2020 4:14 am I found out i have 00% chance of prostate cancer from both sides of the family. I am pursuing preventative removal rather than “regularly test until we see you have cancer

”.

You are very unlikely to get your prostate removed until there are signs of cancer because removing the prostate causes impotence and incontinence, especially if you are well below the age where the cancer starts to become a risk.

..the most are unlikely when prostate must be removed. There is a difference. If there are (small) risks to get cancer, it should be happen. If there are no problems, the health check is ok, than it’s not really necessary. My mind. A general mind is not really possible. But it’s better to reduce the risks, if are given, you should go this way. Incontinence is really the result. Sometimes it is not happened. As ever. And again. Better to make some before. Often it’s too late.

I just recently (7/28/2020) received the results of my prostate biopsy. They came back positive for cancer. The urologist is now having a Gleason analysis performed. This is my second urologist. My first urologist was not responsive. I had a PSA score of 6.4 and he said no worries, so I got a second option. My new urologist wanted to do a biopsy ASAP. So, had I stuck with my first Urologist I would still be in blissful ignorance. The point is you must manage your own health. If you question the results get a second opinion. My next step is to get a Orchiectomy. I know it will be a struggle to get the urologist to approve it. But from all I read on this site it's the right thing to do to extend my life.