Considering that the university that I work for was closed, I was not initially optimistic that my doctor's office would be open. To elaborate the point, I was quite annoyed for the second day in a row when I tried to go to the gym. After spending 20 minutes getting the ice off of my car that had been deposited there yesterday, I had to turn around and come back home without working out. But on my way home I saw that the trip odometer had just rolled over to 144 miles. I swear I'm not superstitious or anything, but that has been *my* number since high school. It probably doesn't help that when I see the number I start looking for something good to happen. LoL. Kind of a self re-enforcing thing I'm quite sure.
Okay, I'm getting way off track. I arrived at the doctor's office plenty early. I know that you are generally only allowed 10-15 minutes for your appointment to talk, but I wanted to give my doctor and I every opportunity to spend as much time together discussing this as possible. My doctor's nurse smiled when I told her that I didn't have any anxiety today. And my vitals were normal unlike last time.
Someone didn't show up for their appointment, so I got a little extra time than I otherwise would have if they had showed up. My family doctor is a very caring guy. I have been seeing him for over a decade as my primary care physician. I would describe him as someone that listens and always wants to help. I value his opinion. It was good that he had visited with my therapist. Because of also having bipolar he was initially a little suspect on what was going on just based on my initial consultation that I had with him during my last visit. Bipolar can present perplexing and complicated issues at times. I once read somewhere as advice to therapists, "If you are confused about the patient's symptoms and you don't know what is going on, suspect bipolar." It always struck me as funny and I wasn't all that surprised when my family doctor told me he had doubts that I had some kind of GID issue. I know I have been a pain in the ass over the years. But he also trusts my therapist who strongly believes that I have a GID issue that needs to be resolved.
He seemed a little confused when I said that I don't identify as being female in any way, but I also don't completely identify as male either. He looked at me funny and I said that it falls under the umbrella term genderqueer. And I went on to explain what it meant. He asked me what my therapist thought of it and I told him that it doesn't really surprise him too much. I think when people think GID, they tend to think M2F or F2M and that's it. But kind of like the area of sexuality, gender bending takes on variation outside of the strict binary gender classifications.
My doctor mentioned that he had done quite a bit of research and read through all of the academic related material I had given him last week. I really appreciate his time and effort on this. He gave me several options on lowering my testosterone level. I was initially surprised that he was thinking about options outside of depo provera. To me at least, it seems the most straight forward and the most commonly used outside of Siterone, which isn't approved here by the FDA in the United States. Then again my expertise comes down to self experimentation and anecdotal self reports on this site, which is good and all but maybe there are other things to consider too. And I haven't really had any problems trialing depo provera outside of maybe raising my blood pressure just a little and the mood problems it causes when I stop taking it. However, he was a little hesitant about any depo (injection) option at this point because they have long time frames that they are active and it is hard to adjust up or down within a short amount of time. I could have swore he mentioned the possibility of using a GnRH antagonist. I should have questioned him a bit more about that. The only thing that I'm aware of is Lupron which is ridiculously expensive and it could be the best option if I was wanting a complete shut down of testosterone. He could have been referring to something else, so I don't really know.
I listened intently during all of this. For a moment, I wasn't 100% sure if he thought that I wanted to go ALL the way down in testosterone. If so, I think that is a REALLY bad idea in the long term because of things like osteoporosis and problems with depression. I know that I would feel relief with a lower testosterone level, but I don't think it needs to go down to castrate levels for it to be effective at resolving my issue. I think the goal should be to minimize the change in hormone levels relative to my current baseline in order to get relief.
There is some possibility that being down at castrate levels may be right for me, but it simply scares the shit out of me. And i'm not for sure I could conceptually and cognitively accept that circumstance. I know I am driven to extremes, but even I have some internal limits. However, I would not have a problem accepting being at a testosterone level at the bottom of the range.
He went just a bit too fast when talking about the GnRH antagonist and the following option. He started mentioning about taking progesterone orally in addition to something else, but I'm not for sure what that something else was. I was kind of surprised by it all. It seems that others have taken progesterone orally and found it to have little effect. Does that seem right? Maybe I misunderstood something. I lost lock on what he was saying for just a moment. I think it had to do with my own surprise at the mention of a GnRH antagonist.
During my previous appointment with my family doctor, I had mentioned trying to start at the high end of
guy26 (imported) wrote: Mon Jan 24, 2011 7:09 pm
the normal range of testosterone a
nd working down. Up to this point, he hadn't mentioned anything about it, so I re-iterated the possibility of going up on testosterone just to make sure that going down is the right thing. I suppose by now he shouldn't be surprised by anything. But he looked at me again with surprise. I know. It seems completely paradoxical to even suggest it.
I mentioned that I strongly felt that if going up had some possibility to resolve or nearly resolve my issue, I would find that much more preferable given the long term consequences of being low on testosterone. I told him that I felt there was only about a 40% chance or less of it working. And I mentioned that my peers that had been castrated and found themselves on HRT, felt even less optimistic that it held much promise. But even so, I wanted to be sure. And I don't feel there is much harm in trying.
It seemed his biggest initial reaction was one of caution. He said that if it exacerbates my GID problem, then I would have stop immediately. I kind of laughed when he mentioned that. That is the whole point of trying it! LoL. I want to be really really sure that going down is the right decision. I need to have that confidence before committing to a long term plan of testosterone at the low end of normal to below normal. I would be happy in a way if I go up on testosterone and I feel that it is absolutely wrong. To me that would be a clear signal that going down is the right option. And I would no longer have doubts. As a reminder, the only reason I have some doubts is because of my experience with pro-hormones from years ago.
I asked him if he felt comfortable with this option and he said yes. He said that if I'm already at the high end of the normal testosterone range, then there would be no room to go up and it wouldn't be an option. I reminded him again that I had it checked twice in the past and I was right in the middle of the range. He double checked on the computer and said okay, you're right. I asked him if we go up and I am in the middle of the range, then what would be the target. He said the high end of course.
Because I don't have significant permanent damage, it complicates matters just a little on trying to reach some target testosterone level. And in my own research, I haven't felt completely happy with my understanding on the matter. So I asked him on how fast and how much the HPT (hypothalamus pitu
guy26 (imported) wrote: Thu Jan 27, 2011 3:29 pm
itary testicular) axis adjusts to exter
nal sources of TRT (testosterone replacement therapy). He said that within a month my body will have adjusted its own production of testosterone down in response to taking exogenous testosterone. And by three months with a stable amount of exogenous testosterone there shouldn't be much if any changes to the HPT axis.
Given all that, my family doctor agreed to start me out with testosterone and a target of the high end of normal. But he wanted to get a more recent testosterone reading before proceeding. That sounds like a good idea given what I've recently done and the fact that the two previous readings were from 5 years ago. I am really curious if what I did will show up in the test. Based on my own internal sense of things, which has been proven to be a bad indicator by others on here for gauging ones level of testosterone, I don't think anything has really changed. I'm guessing that I am still right in the middle of normal. We shall see and I will let you know here in a couple of days when the test comes back.
At this point my doctor made it a point to let me know that my insurance may not pay for any of this. I told him I know. It seems that some insurance companies do not like to pay for GID related problems--both hormones and surgeries. In this case, it might even be less likely because my specific problem is less understood medically and it is an even rarer kind of GID problem. Krister, mentioned that my problem may only affect about 1 in 25,000 people. I don't know how that number was calculated, but this is a very rare problem indeed. And considering how difficult and taboo of an issue, many people probably never even present themselves to professionals for help, which obviously keeps this kind of problem in the dark.
My family doctor mentioned that he would prefer that I use androgel. I'm okay with that initially even if insurance is unwilling to pay. It is damn expensive, but I have the money for it for now. And this is more of an experiment than anything. No one really knows how this is going to affect my GID problem. To me it is important that I finally deal with this issue and find a resolution. Money isn't exactly the overriding factor at this point. If in the unlikely case that going up on testosterone somehow makes me feel enough like of a man inside and resolves the incongruity, then it will be more important that insurance contribute somehow or we switch to something cheaper like weekly injections of testosterone cypionate. Giving myself injections doesn't scare or concern me. If I can do it with depo provera, I don't see why any other muscular injection would be different.
So before I left, I had to have my blood drawn. My doctor left the room and said that someone would be in shortly to take my blood. He joking left the room almost singing the words "you are going to get your testosterone measured." I laughed and then the room was quiet. The phlebotomist arrived after 5 minutes. She was quiet and pleasant. Normally I am slightly nervous about having my blood drawn, but after having gone through quiet an epic conversation with my family doctor, it seemed mild in comparison. Imagine that.
This is hopefully the last step before starting on the journey to finding an answer. Because God knows I have waited half my life for this. I was so surprised when she stuck me with the needle. It was the least amount of pain I have ever felt when having my blood drawn. Maybe she stuck me in a small vein because it took a bit more time than usual to fill up the test tube. When she was done, I was compelled to tell her what I was thinking. There are at least a couple of realty TV shows based on addiction. And I recalled how I watched a woman who had been addicted to heroin for 10 years try to find a vein on her body that she could reach and inject her drug. Virtually all of the near surface veins had collapsed. After an hour she gave up and asked her boyfriend to help. Eventually they resorted to injecting heroin into her carotid artery on her neck! Holy Shit! It was so painful to watch. They didn't cut away for even a moment. Damn them. LoL. My phlebotomist recoiled in horror and disbelief and told me that she could never inject herself. But she said she didn't have any problem doing it to others. I'd hope not!
You might be wondering why I felt compelled to offer so many details about my latest trip to visit my general practitioner. I could have just told you, "Yeah, my doctor agreed to start me on testosterone." It's because I know many on here are scared to approach the medical profession and ask for help. I have been there myself. What we face in being drawn toward castration, whether it is BIID or GID based, is difficult or near impossible to approach them with it. Many on here act on their own accord or seek out back door cutters or more recently are injecting everclear into their testicles on their own. I completely understand all of that and have nearly relied on my own accord for years and years. And these issues are just on the fringe edge of what is even discussed in peer reviewed journals. But because I have taken the chance and opportunity to ask for professional help, I feel that it is important for you to see that you don't have to be afraid. You just have to be open and honest about what is going on. It is quite likely that your mileage WILL vary if and when you decide to ask for help, but I encourage you to reach out and take that risk.
I will continue to keep you updated about what happensÂ…
