I spoke earlier in this thread about "
Danya (imported) wrote: Mon Apr 14, 2008 9:18 pm
major and recent frustrations with the Harry Benjamin Standards of Care for Gender Identity Disorders
". What I've copied in here is from an email I sent to Jesus on this subject. I wrote it the morning after a visit with my gender therapist. After that session, I was really angry with the entire system build around SOC for transsexuals. I've edited this to remove the names of the people involved at the university.
I want to make it clear that it is my hope, despite my frustrations, to continue on with the University of Minnesota program. They have a world-class reputation, I have a very good rapport with my gender therapist and I believe everyone I work with there is trying to do what is best for me. Of course, they are quite naturally concerned about potential lawsuits, too. What medical professionals aren't?
I had thought of writing something 'new' on my frustrations but I think this describes them fairly well. What I had written to Jesus the day before, soon after my session, was more of a rant that was good for letting off steam but not so good for making a rational argument for changes to the system. I wrote this, OTOH, after I'd had a chance to calm down and figure out what it was about the system, as I was experiencing it, that was bothering me.
While my reaction as written here is to transsexual SOC, many of the issues I talk about are potential trouble spots for any proposed SOC for eunuchs, too. I've got other problems with SOC that I may post at another time. This does not at all mean I think SOC are unimportant. I do think the existing SOC could use some major revisions. In the end, much of this post reflects my dissatisfaction with the operation of the program at the University of Minnesota. I suspect, though, that similar problems are common in other gender clinics.
Here goes:
"This SOC business with the university has got me thinking quite a bit. At this point, I’m mostly considering how the interactions of the professional and client community could be handled better. For now, I’m left feeling that I’m being treated without fairness or thought for my feelings and concerns.
"This problem could have been largely avoided if the Program in Human Sexuality provided clear communication from the beginning on how the system operates. The clients need to be given a much better understanding of what they can expect, including potential reasons for decision delays and a realistic time frame for a decision on HRT. I should not have been left guessing after my first visit with the university physician as to why I wasn’t prescribed estrogen on the spot. All she told me was that she needed to take up my situation with her staff because of concerns about my age and my family’s medical history. No one told me until weeks later that this subsequent meeting with staff is standard procedure for everyone. If I’d known this from the beginning, I would not have been upset about her response. What I knew at that point was that an acceptable qualifier for HRT was a minimum of three months of psychotherapy with evid ence of a consolidation of gender identity. My therapist had interpreted my MMPI results and concluded that there was no contraindication for HRT or surgery. During my last visit with her before seeing the physician, she said ‘you’re free to try whatever hormones you want’. Clearly, this was not the case and, although it makes sense to me that they be cautious about medical issues, I went to the doctor appointment with unrealistic expectations.
"If the university is truly adhering to SOC, they should be able to handle things more efficiently and smoothly, too. Being told yesterday that I would need to take two additional psychological tests left me feeling angry that they hadn’t provided the tests sooner. I realize now that I am angry, after all, at my therapist for forgetting to administer one of these when I started. The second of these recent tests is a new requirement for the program. If I had not made yesterday’s ‘extra’ appointment with my therapist, I would not have found out about the requirement for these tests until late April. By that point, it may have been too late for the university to get the results before the next monthly meeting of my committee in early May. Then there would have been even more delay.
"There was also an initial delay of several weeks for the doctor's office to contact me about getting my first appointment. I had to keep badgering my therapist that I hadn’t yet heard from them. This left me feeling that I was at the mercy of an uncaring and poorly functioning bureaucracy that couldn’t get its act together.
"The fact that the university, to the extent of my experience with the program, is very insular in its attitudes is another problem. They apparently have few contacts with professionals beyond their own domain and they don’t seem terribly interested in establishing any. When I suggested yesterday that they talk with my own psychiatrist to get his opinion, my therapist thought it was a good idea – finally. I can understand that they might want an ‘official’ evaluation by their own psychiatrist (mine is scheduled for May 2) but if they are following clear SOC why didn’t they officially request this earlier? The idea of seeing their staff psychiatrist was first suggested to me by my therapist a few weeks ago and at that point it wasn’t a requirement of the committee. She may have realized that they would likely ask for this and wanted me to get an appointment as soon as possible. My initial concern when she suggested this, which m ay be totally invalid, was that the committee would hear that I’d made the appointment and then use that as a rationalization to extend the decision time further. ‘Aha, he/she’s already got an appt with our shrink, let’s wait another month to hear how that comes out.’
"Then there was the much earlier issue of my therapist practically having to beg her boss to release her MMPI interpretation to me. It appears that I speeded that up by threatening to demand to speak with her boss myself if the official report were not released to me. It is my legal right to have this report.
"All of these factors leave me feeling that I’m not being treated with respect as a client who is paying them and deserves to be kept better informed atevery step of the process. I know how universities tend to do things so all this shouldn’t surprise me. On the other hand, I’ve always hated the excuse that ‘that’s the way it is’ or ‘it’s always been this way’ as rationalizations for poor performance and service. I absolutely think standards are important but clinics are going to drive many folks away if they feel they are not being heard and treated with dignity."