Flowcharts and Algorithms

[ZeuterMe (imported)]

There seems to be very little agreement on how to treat chronic nut pain. I suspect it has something to do with the fact that the condition and its causes are very poorly understood, with no plausible cause in over 25% of all cases.

Here's what I've found in the way of treatment protocols, which typically start with tylenol and end with surgery, moving from noninvasive to more invasive.

http://www.jfponline.com/home/article/a ... -pain.html

Also available as a PDF here: http://www.jfponline.com/fileadmin/php/ ... ticle3.pdf

From the Yahoo orchialgia group, this playbook was developed by sufferers for sufferers. I've formatted it as a one-page PDF for easy printing: http://cl.ly/3J1Q342h0d1S

Also, as previously implied, there is a Yahoo group available for sufferers to discuss what's helped and provide support. It's by invitation only, in order to screen out spambots and fetishists, but anyone with a plausible description of what they're dealing with should find no problem being invited in.

I hope it helps anyone else with this problem. :-\

[Losethem (imported)]

I've got a local friend who battled intense nut pain for 30 years. They never were able to figure it out. They cut his balls off and suddenly he's good. Pain gone. He begged them to do that for 15 years. Now they have to get him off the narcotic pain medications he's been on for 20 years. Sheesh, you think they could have saved a bundle by cutting his nuts off when he asked them the first time.

He's happier now. Glad he did it. But now he's got the pain klller addiction to kick.

--LT

[ZeuterMe (imported)]

I've got a local friend who battled intense nut pain for 30 years. They never were able to figure it out. They cut his balls off and suddenly he's good. Pain gone. He begged them to do that for 15 years. Now they have to get him off the narcotic pain medications he's been on for 20 years. Sheesh, you think they could have saved a bundle by cutting his nuts off when he asked them the first time.

He's happier now. Glad he did it. But now he's got the pain klller addiction to kick.

--LT

Oh geez, I'm sorry he had to wait so long. Hell, I'm sorry I had to wait so long, and he's been at this ten times longer. :/

[micdavi24 (imported)]

I've got a local friend who battled intense nut pain for 30 years. They never were able to figure it out. They cut his balls off and suddenly he's good. Pain gone. He begged them to do that for 15 years. Now they have to get him off the narcotic pain medications he's been on for 20 years. Sheesh, you think they could have saved a bundle by cutting his nuts off when he asked them the first time.

He's happier now. Glad he did it. But now he's got the pain klller addiction to kick. --LT

This is the problem in that docs would rather throw drugs at their patients than remove a set of painful nuts. Another problem is that most docs suffer from a god complex in that they think they know better than you what is wrong. Case in point, the first urologist that I consulted regarding my testicular pain told me outright that the pain was coming from my back and all this without any examination or scans to go from. He did give me some pills which were totally useless and also sent me to have a scan, but I never took the trouble to go back to this idiot., simply asked my GP for a referral to another urologist. This was 5 years ago and I wish I had been referred to my current urologist the, as I would probably have had them removed shortly after the first consultation.

ion.

[Wellesley (imported)]

Agree with all the above posts

My pain started at 19 and I was 30 when I had the last one out.

I will bring up the fact that the medical community in general values testicles far more than ovaries. Maybe because there is a lot more data about ovaries????

Still a woman with a good reason can get a radical hysterectomy (which in my experience includes the ovaries and cervix as well, apparently this is not the case in the US using the term "radical hysterectomy") and bilateral mastectomy. This is extremely lopsided as one will have the evidence that if a man lives long enough we all will get prostate cancer.

Totally odd. However most doctors and definitely most surgeons are still male so maybe that explains it?

[ZeuterMe (imported)]

Agree with all the above posts

My pain started at 19 and I was 30 when I had the last one out.

I will bring up the fact that the medical community in general values testicles far more than ovaries. Maybe because there is a lot more data about ovaries????

Still a woman with a good reason can get a radical hysterectomy (which in my experience includes the ovaries and cervix as well, apparently this is not the case in the US using the term "radical hysterectomy") and bilateral mastectomy. This is extremely lopsided as one will have the evidence that if a man lives long enough we all will get prostate cancer.

Totally odd. However most doctors and definitely most surgeons are still male so maybe that explains it?

Probably. :p "I'd never want that, therefore, nobody else would either" thinking at its finest.:shakemitk

[micdavi24 (imported)]

Probably. :p "I'd never want that, therefore, nobody else would either" thinking at its finest.:shakemitk

I totally agree with you in this. Why it is probably better to consult a female urologist as they would tend to be more pragmatic about removing testicles. My first choice was the only female urologist in Sydney, but since she was on holiday at the time, I went with my second option and he was an older guy and was willing to remove mine. One thing, when the discussion comes to removal, DON'T dance around the point, come right out and tell the urologist that you want them gone.