curious_guy (imported) wrote: Thu Sep 11, 2014 9:12 am
How long were you ill before you were correctly diagnosed? What incorrect diagnoses did you get?
It is complicated! I went to my GP because of my shrunken testes and kidney pain. The testes is due to injections, but I also get orchitis have for years along with infections of prostate. When my testosterone was at 46 they did an MRI suspecting secondary testicular failure because of my breast tissue..... Then they found the tumour. It has been going on since the beginning of 2014
A bit of good news. I have been given the all clear on the H Pylori in my stomach. looks like we have killed that bug. Still having investigations for the stomach pain. My headaches are getting more intense and for longer with visual disturbances. Believe me seeing two of me in the bathroom mirror in the morning is a scary experience. It seems to be affecting my adrenal levels and I get pretty exhausted.
jcat (imported) wrote: Fri Oct 10, 2014 11:20 pm
A bit of good news. I have been given the all clear on the H Pylori in my stomach. looks like we have killed that bug. Still having investigations for the stomach pain. My headaches are getting more intense and for longer with visual disturbances. Believe me seeing two of me in the bathroom mirror in the morning is a scary experience. It seems to be affecting my adrenal levels and I get pretty exhausted.
If you are having problems with your vision let your doctor know right away. I was lucky and got my vision back but apparently that does not happen often.
jcat (imported) wrote: Fri Oct 10, 2014 11:20 pm
A bit of good news. I have been given the all clear on the H Pylori in my stomach. looks like we have killed that bug. Still having investigations for the stomach pain. My headaches are getting more intense and for longer with visual disturbances. Believe me seeing two of me in the bathroom mirror in the morning is a scary experience. It seems to be affecting my adrenal levels and I get pretty exhausted.
Vision issues are serious matters. I deal with extensive nerve damage to my optic nerves, as well as ophthalmic hypertension. I am monitored extensively - going blind is a scary option. See an ophthalmologist that deals with this sort of thing.
kristoff wrote: Tue Oct 14, 2014 7:10 pm
Vision issues are serious matters. I deal with extensive nerve damage to my optic nerves, as well as ophthalmic hypertension. I am monitored extensively - going blind is a scary option. See an ophthalmologist that deals with this sort of thing.
Thanks Kristoff, I have a really good ophthalmologist and he did extensive tests last week referring me on to the opthalmology department at the hospital.
I am getting ghosting quite often and on some occasions wavy lines and white or star like dots.
It comes and goes and sometimes with and sometimes without headaches.
I passed the vision field test and it looks like the disturbance is on one eye.
As in multiple, faint images to the sides of bright objects or lights?
I don't know if it's my glasses or what, but since getting this pair, with astigmatism correction, I tend to see multiple ghost images of say, bulbs, oncoming headlights, etc. My left eye has certainly degraded a great deal in the past 6 months, while the right one hasn't.
I often see white/gold spots swimming if I cough or sneeze very hard.
As for headaches, I have them so much that I don't even pay attention to them anymore.
As in multiple, faint images to the sides of bright objects or lights?
I don't know if it's my glasses or what, but since getting this pair, with astigmatism correction, I tend to see multiple ghost images of say, bulbs, oncoming headlights, etc. My left eye has certainly degraded a great deal in the past 6 months, while the right one hasn't.
I often see white/gold spots swimming if I cough or sneeze very hard.
As for headaches, I have them so much that I don't even pay attention to them anymore.
All of the above! But also turning left or right it gets to be real double vision. right now my keyboard is doubling up! Incidentally I don't drink!! I pretty much have a low level headache all the time that intensifies and that is when the worse visual disturbances happen.
I am off to see the urologist about my atrophied testicles next week and sadly they may have to remove them! They will if my latest injection of has anything to do with it.
I am starting to feel the onset of desperation again. This time I am going to try and talk it out here instead of going off and doing something crazy again.
jcat (imported) wrote: Thu Oct 16, 2014 11:23 pm
All of the above! But also turning left or right it gets to be real double vision. right now my keyboard is doubling up! Incidentally I don't drink!! I pretty much have a low level headache all the time that intensifies and that is when the worse visual disturbances happen.
I am off to see the urologist about my atrophied testicles next week and sadly they may have to remove them! They will if my latest injection of has anything to do with it.
I am starting to feel the onset of desperation again. This time I am going to try and talk it out here instead of going off and doing something crazy again.
Sounds like a form of migraine. You may also suffer from retina problems and or cataracts. go make an appointment with an ophthalmologist. However, you may just be having visual migraines from the stress that you are under due to your gender dysphoria. so perhaps you need to see the urologist first....
Kangan2008 (imported) wrote: Fri Oct 17, 2014 1:23 am
Sounds like a form of migraine. You may also suffer from retina problems and or cataracts. go make an appointment with an ophthalmologist. However, you may just be having visual migraines from the stress that you are under due to your gender dysphoria. so perhaps you need to see the urologist first....
My eye tests are all fine apart form ageing! My longsightedness is becoming more short sighted in the right eye, bit only .25. I am waiting for a hospital appointment, because of the pituitary.
Over the years, I've had temporary, limited, obstruction of vision in both eyes, accompanied by shimmering halos. It goes away after 15 - 20 minutes. I discussed it with my ophthalmologist, and he said it was probably an optical migraine, which, in my case, isn't accompanied by any pain. They don't know what causes them.
